About us?



We are a non-profit foundation with the desire and hope to help children, youth and adults with Osteogenesis Imperfecta (hi) and rare diseases. With legal personality No. del 4 December 2007 and Resolution of the Ministry of Economy and Finance number 201-1945 del 1ofebruary 2011.

Our organization was born as a result of the concern of parents for not knowing it was the Osteogenesis Imperfecta (hi) (Crystal children) as there was little knowledge regarding the same and for this reason they had no treatment and many children died without having a life expectancy.

MISSION:
Being a foundation that works to the benefit of children, youth and adults with rare diseases and oi, seeking guidance, medical care, awareness and specialized family to promote their development and integration into society.

VISION:
Improving the quality of life of children, youth and adults affected by Osteogenesis Imperfecta (hi) or Rare Diseases.

Present:
We have at least 114 registered cases of children being 75% Crystal Children and 25% Diagnosis infrequent (E.R)

We have the support of the following PUBLIC INSTITUTIONS:
Secretary National Disability (SENADIS), Ministry of Health (MINSA), Office of the First Lady
National Institute of Culture, Secretary of National Borders (SENAFON); Panamanian Institute of Sport (PANDEPORTES).

With private support CSR:
BANCO GENERAL, Global BANK, CAFETALES, S.A., Martha Studio.

UNIVERSITIES:
Universidad del Istmo (UDI), National University of Panama.

SERVICES PROVIDED:
Information and Family Orientation
Physical Therapy – Hydrotherapy
Psychological Therapy – Consultations
School Advisory – workshops
International Support – treatments

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